Sunday, September 2, 2012

A Shore Thing: 9/2/12

It's September 2nd. This time 2 years ago Bryon and I were sitting in Kessel's Corner eating breakfast with my sister. The little corner restaurant is walking distance from my sister-in-law's place in Ocean City, NJ. Andrea ordered a huge breakfast that morning... blueberry pancakes, eggs (over easy), bacon and toast. She cleaned her plate that morning. The 3 of us talked about Andrea's phyiscial obstacles... and her goals. Andrea was fully dependent on a wheelchair at this point. She sat across from us telling us that she'd wasted too much time and energy on negative thinking. She wished she had listened to her surgeon in June of 2008 when her told her that she was cancer-free. He told her that he removed all of the cancer from her body when he took her pancreas. She didn't believe him and went on to do systemic chemotherapy. 6 months later... tests revealed spots on her liver. In the summer of 2010, she explored alternative therapies after exhausting all conventional medicine. She told us that she wished she'd gone that route sooner. We enjoyed a nice breakfast that morning. I didn't know it at the time, but this would be the last time I sat in a restaurant with Andrea.

Andrea and I had planned this trip to the shore months before she lost the ability to walk. My sister-in-law was nice enough to let us stay at her Ocean City place for the week. The 3 bedroom shore house suited our families perfectly. Just 3 weeks prior to our shore trip, Andrea was admitted to the hospital for pain. We never anticipated that she would spend 2 weeks there. When she was released 2 days before her birthday, she was determined to make that trip. If Andrea really wanted to meet us down the shore, I had to be upfront with her. I told Andrea that the house had alot of steps leading to the front door (Bryon carried her piggy-back). I told her that she had to make her way up 4 steps to get to the bathroom from the living room (she scooched up on her hiney). I wasn't trying to discourage her, but this adventure would test her physically. Bryon and I had to prepare for her visit. We called all over in search for a beach wheelchair. We purchased a lounge chair big enough to keep her feet out of the sand (she had to go to the beach). Bryon installed a new shower head so Andrea could sit in the shower. We accomplished all of these tasks. We were ready... so was Andrea.

Andrea could not drive, so my mom volunteered to drive my sister's blue Chevy Trailblazer to Ocean City, NJ from Warrington, PA... a huge accomplishment in itself. My mom won't drive on any major highways in her little black Saturn. Andrea was so proud of our mom! They arrived around 11:00am on Wednesday, September 1st. The plan was... go right to the beach. We dressed Alexa in the back of the Trailblazer and went to the beach. Bryon double-parked at 34th Street. My mom and I unloaded the kids, Bryon set-up the umbrella and chairs and trekked back to the car for Andrea. I can still see Bryon pushing Andrea on that wheelchair made of PVC pipe and huge tires. He carried her to her lounge chair, she made herself comfortable and smiled. Here comes my favorite part of that afternoon... Andrea pulls out her Blackberry to update her Facebook status. Bryon looks at her and says... "If you don't put that thing away, I'm gonna throw it in the ocean!!" Andrea responds..."it relaxes me." Bryon retorts..."You're on the beach. What's more relaxing than that!?!" Andrea sulks... "fine!" No more Blackberry after that conversation. On a side note, if you go back to that date on Andrea's Facebook page you can see her status update from the beach.

Andrea watched Alexa play in the ocean for the first time that day. Andrea insisted that Alexa wouldn't go in the ocean, so we didn't put a swim diaper on her. Her diaper was down to her knees after 5 minutes in the water. Alexa didn't mind. She had a blast with everyone!! When it was time for lunch, Bryon said he would run up to Blitz's Deli to grab hoagies. "What do you want, Andrea? How about a hoagie?"  Andrea paused, thinks... "OK. Italian." She ate the entire thing!! Please understand, Andrea drastically changed her diet months prior. In a nutshell... NO BAD STUFF!!. She took a break from that diet for 2 days.




Wednesday evening we ventured up to the boardwalk. This was an eye-opening experience for me. It was challenging to maneuver the wheelchair through the crowds. Andrea nervously sat as people grazed her tender feet, sometimes yelling... "watch out!!" We were hungry... again. So we asked Andrea..."what do you want?" The answer: pizza. Now where do you go for pizza on the OC boardwalk? Mack and Manco's, of course. After "dinner"... rides!! After rides... Kohr Bros. ice cream!! After an exhausting day... bed.



Andrea and Alexa shared a room that night. Andrea's blood sugars were low that night. She'd been a diabetic since her pancreas surgery 2 years prior. As she settled in bed, I brought her orange juice to help elevate her blood sugar. I kept my cell phone by my side all night, just in case she needed me. She texted me first thing in the morning. I went in her room to see her... more orange juice. When I returned with the juice she told me that she'd slept pain-free all night. She was pain-free for the first time in over a month!! I guess you could call it beach therapy.




After breakfast at Kessel's Thursday morning, we took the kids to the playground. Shortly after, Andrea packed up and ventured back home.

I look back on those 2 days and I am amazed!! Amazed at what Andrea accomplished in a total of 26 hours. I never imagined that Andrea would be in hospice 3 weeks later. Never.

Andrea always lived life to the fullest. Always. Cancer or no cancer, she did what she wanted to do.

Lesson learned: Appreciate life every day. Live life to the fullest every day.

Saturday, September 1, 2012

Happy Birthday, Andrea! 9/1/12

My sister Andrea would've turned 36 years-old last Saturday. My sister and I always made dinner plans for her birthday. But, the past 2 years we've celebrated her birthday in the cemetery. I don't want this to sound morbid because it wasn't. Alexa refers to Andrea's grave site as "Mommy's special place." And we do our best to make it special. So... a parade of McGinleys, young and old, walk across the street every year from my dad's home to the "special place" to wish Andrea a happy birthday. This year, we brought flameless candles and a big Happy Birthday balloon. Before we had the chance to sing to Andrea, the big balloon came loose from its string and floated up towards the sky. Alexa started jumping up and down with excitement. My 6 year-old son started cheering... "the balloon is going up to Aunt Andrea!!! It's going up to heaven!!!" As the sun broke through the murky sky, we all watched the balloon dissolve into the clouds. We sang to Andrea, then made our way back to dad's for dinner. As we walked down the path, a single yellow butterfly passed us. Maybe on her way to see the gifts we left behind. The candles still glow at Andrea's "special place." A beautiful sight in the evening. A beautiful way to celebrate a beautiful woman.

                                                            Andrea's Birthday 2010

After dinner, I met with some of Andrea's closest friends to celebrate with them. We met at an Italian restaurant this year. The first time the group of us celebrated Andrea's birthday together, she had just returned home from the hospital. It was August of 2010. We met at Andrea's house and ordered take-out from her favorite vegetarian restaurant. She was tired, but talked all night about her 2 week nightmare in the hospital. Of course Andrea's stories don't come without a heavy helping of her sarcastic humor. She could find humor in any situation, even the worst situations. That's how she coped. That's how all of us coped. Now back to dinner last week. All the girls were sitting, chatting, catching up on things. We watched as a waiter brought a birthday desert to a girl sitting at the table beside us. We politely listened as the group sang happy birthday to the girl... "Happy birthday dear ANDREA..." We all looked at each other and my cousin said... "did they just say... Andrea??" Yes, they did. What an amazing sign!!! Our eyes welled up at the thought. What are the chances?? We felt like she was there with us. What a good night. What a great way to end the day!

                                                            Andrea's Birthday Dinner 2011

August has come to an end and we now focus on the anniversary. We lost Andrea to pancreatic cancer on September 26, 2010. Last year, we celebrated Andrea with a butterfly release preceded by a mass in her honor. I'm not sure what we're going to do this year. In fact, I'm looking for feedback on this. The big question is... "What should we do?" I want to do more. I want to honor Andrea's memory by helping others. I know I'm not alone in this. So, on the grander scheme of things... how can we truly honor Andrea? I don't have the answer just yet, but that is my goal.  That is how we can truly honor Andrea's life.

Below are links to a few organizations doing great things. All of the organizations are inspired by loved ones lost. Please take a moment to look and ask yourself... "What can we do?"

Joan's Monarch Wishes

Careys Against Cancer

Kisses for Kyle

Alex's Lemonade Stand